News

Donation to the Neurodevelopment Lab of Dr. Achira Roy at JNCASR

Jun 29, 2022

First FDA approved treatment for PIK3CA-related overgrowth spectrum

Apr 8, 2022

Looking back on the decade in M-CM research and progress

Jan 15, 2020

Report from PI3K/PTEN pathway scientific meeting

Sep 17, 2019

Megalencephaly Capillary Malformation Syndrome (MCAP) added to Social Security Administration Compassionate Allowance List

Sep 11, 2018

We Welcome Mike O’Donnell to Our Board of Directors

Mar 30, 2018

Get on the Carousel With Us to Fund Research for M-CM

Jan 19, 2018

Our 2018 Research Agenda

Nov 9, 2017

A Summer Campaign: Send Jordan to England

Aug 18, 2016

Rare Disease Day 2016

Feb 29, 2016

Upcoming webinar on coagulopathy

Aug 9, 2015

7th annual UK meet with a presentation from the Segmental Overgrowth Study

Jul 15, 2015

French M-CM Video

Mar 16, 2015

Honoring Layla

Mar 6, 2015

Learn how the first clinical test for M-CM was developed

Feb 19, 2015

A Report on the 2013 Chiari and Syringomyelia Conference

Sep 6, 2013

Nomenclature Letters in the American Journal of Medical Genetics

Aug 6, 2013

Genetic Mutations in PIK3CA Identified as Cause of M-CM

Jul 10, 2012

What's in a Name?

Apr 27, 2012

Cancer Screening for M-CM Patients, New Recommendation for CLOVES Syndrome

Feb 11, 2012

Contact Registry Launch, Survey Coming Soon

Jan 23, 2012

Genetic Discoveries for M-CM and MPPH

Sep 27, 2011

Expanded Board of Directors

Aug 24, 2011

Expanded Medical Advisory Board Includes Dr. William Dobyns, MD and Dr. Ghayda Mirzaa, MD

Aug 8, 2011