Rare Disease Day 2016

It's Rare Disease Day and our incredible community has been busy this year spreading awareness about M-CM.

See television pieces for Paul in Illinois, Lani in Australia, and Kenzie in Michigan.

Stephanie Moreland has released her beautiful children's book about M-CM in honor of her son, Luke.

Jordan has Instagram posts about her experiences with rare disease and being part of the M-CM community.

La Asociación Macrocefalia con Malformación Capilar de España, the M-CM patient organization in Spain, launched their new website today.