Resources

Links

Medical Resources 

VAccess provides information and provider listings for vascular anomalies care

International Organizations

Association M-CM France & Facebook page

AMCM España (Spain) & Facebook page

Facebook Groups

M-cm ( Macrocephaly - cmtc ) Group - this Facebook group was founded by families in the UK and pre-dates the M-CM Network. We encourage affected families to join. It is moderated by UK families.

Parents d'enfant M-CM (Macrocéphalie Malformation Capillaire)

PIK3CA Related Overgrowth Spectrum (PROS)

Hats and Helmets

Big Hat Store

Big Head Caps

KAV Custom Helmets

Plum Enterprises Head Protection

S1 Mega Lifer Helmets

Helmets for Large Heads - helmets.org

Footwear

Crocs stretching video

Store policies for split sizes - Nordstrom is known for their split sizes policy, but other retailers are listed here

New Balance - comes in very wide widths

Mt. Emey Shoe

Dr. Comfort - see "Double Depth" options

Stonz Booties - snow boots for babies and toddlers

Soft Star Shoes made to measure

Swedish Moccasins 

KoolBoots snow boots designed for AFOs

Books from Our Community

Wonderfully Made a children's book about M-CM by Stephanie Moreland

Makenna the Mighty is a beautiful story about a little girl's journey through childhood illness, finding strength, and maintaining family bonds by Brandy James, Ph.D.