Contact Registry
For diagnosed individuals, register to stay informed and be counted
A meeting will take place in Manchester, UK in March 2019 to update management guidelines for M-CM. We want to bring the knowledge and experience of the patient community to this meeting. To start, we have set up a short survey to collect information about your experience with M-CM.
You can review current management guidelines here.
For diagnosed individuals, register to stay informed and be counted
Learn about donating brain tissue or cerebrospinal fluid for research
A list of research studies enrolling M-CM patients
Learn about fundraising to support our work